Wednesday, 8 February 2017

Migraine or just a headache?

With the start of a new year, like many, I do try and hope that it will bring brighter days when it comes to my health struggles.

So far, it really hasn't.

I think I managed to get approx 10 days from just after boxing day, without a major migraine.

As much as I hate to go on about it , I have recently experienced several instances where people use the word migraine when they simply have a worse than normal headache. And quite frankly, it pisses me off.

Last week, I had a particularly bad migraine. It left me bed bound, up to my eyes in medication (which mainly didn't work), head covered in ice packs, eye mask to block even the tiniest bit of light, sick bucket to hand, and physically unable to even sit up unaided to have a drink.

These times are completely debilitating for me. Thank God that I had Matt here to look after me, otherwise I would not have even had a sip of water all day.

When I see comments on facebook or instagram etc where the person is "having such a bad migraine", I think: Bollocks! I can guarantee that you would not be looking at a screen typing about it if you had a migraine.

Don't get me wrong, I understand that we all have our different pain levels/tolerances etc, but seriously, you cannot assume that a bad headache is the same as having a migraine. Have a look here on the website for The Migraine Trust for a detailed description.

I think what bothers me the most is that the use of the word migraine gets bandied around when people actually only have a headache, and so I feel like it detracts from the severity of what a migraine actually entails for most of us sufferers. Then, for those of us who are genuinely unable to work because of the frequency and severity of them, it makes it just seem like we're just moaners and spongers.

The feelings of low self esteem and self worth, sometimes utter despair, depression and anxiety, for me, go hand in hand with my migraines too. Those feelings are a battle on their own. When you have days on end that you are unable to even perform the simplest of tasks within the home without making yourself physically sick, or to be able to provide your family with a meal at the end of their working day leave you wracked with guilt and upset.

A million people can tell you how great you are for getting through 3 open brain surgeries without any real disabilities, but I am more and more feeling like I actually have been left with a disability.  Yes, I've tried keeping a food diary to see what might trigger the migraines. The trouble is, that the general consensus from the various Neurologists I have seen, is that my migraines are trauma related. From having the surgery basically.

 I have recently just started logging all the headaches and migraines again as I feel that I've come to a stale mate with the Neuro team and am seriously considering paying to see a private headache specialist.

So for now, at least, the battle continues. Meanwhile. Do me a favour please.  If you or anyone you know are having a bad headache,  please just describe it as such.  Please don't belittle what some of us have to endure on a very regular basis.  Cheers ♡



noun: troglodyte; plural noun: troglodytes
  1. (especially in prehistoric times) a person who lived in a cave.
    • a hermit.
    • a person who is regarded as being deliberately ignorant or old-fashioned.

1 comment:

  1. Thanks for sharing lovely! Chronic pain must be so tough to live with. I can only imagine how irritating it is to hear others using the term migraine to label a mere headache! They are not even in the same league.
    I think it might be a good plan to see a private consultant. As we both know the NHS aren't always able to offer the right treatment. A specialist could really help treat your symptoms properly.
    Sending hugs lovely. xxx